Willem's dying body lay in my arms and I find joy in running my fingers through his hair and he speaks to me. I smile and find an immeasurable amount of joy in realizing that, hey, Willem isn't dying after all; he's got long hair where once he had none. He's getting better! There's hope again and my boy will be fine!
And then I awaken. I awaken with the taste of joy still fresh on my tongue and the horribly bitter taste of reality quickly follows.
One deep sigh and a small tear in its wake.
Monday, May 21, 2012... I want so badly for my heart to fail -- anything -- I do not wish to live.
But I have to. I have to.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
Monday, May 21, 2012
Sunday, April 29, 2012
Wrung
There is a pain involved with giving away some of Willem's possessions: The pain is usually offset, somewhat, by the joy in the faces of the children receiving the item. I was walking down our street with three pillow pets in my arms when three neighbor children yelled, "hi" to me from behind a fence. I, on a whim, asked if they wanted a pillow pet -- they screamed in delight as they ran toward me; one saying that she's never had a pillow pet. I asked only that they take good care of them.
The effect of of giving away that which is part of Willem, to those who are brought such great joy by the gift, is much like that of a soaked cloth being wrung dry; one effect nearly negates the other. Nearly.
I feel a tremendous amount of guilt in reallocating Willem's possessions but I hope - I hope so very much - that Willem is somewhere, watching me, saying, "Nicely done daddy. Nicely done."
Friday, April 27, 2012
HUMBLED
Humbled. Truly, and, unequivocally, humbled. These are the words I have for the Celebrating Willem fundraiser held on April 19, 2012. There is much that need be said, and many that need be thanked. I do not wish to make light of the fact that money had been raised by saying that so much more than money was raised -- yet the fact remains that so much more was accomplished than just raising money.
I will have much more to say on this subject, perhaps, in future writings for much is happening; transformations are taking place; ideologies are changing; "...friends shaking hands..."
It is my understanding that there is much desire to know how much money was raised via the fundraiser, and I completely understand that it is because of the shear magnitude of the event -- I get that, and I would wish to know as well.
Well... The numbers are still being tallied, quite frankly, and the exact amount is not yet known. I can tell you this, however, the number of people (I was told) that showed up was around 800 (600 adults and 200 children) -- it boggles the imagination. It boggles my imagination. I can also tell you this: the goal was to raise $10,000.00 and the fundraiser far exceeded this amount; quite possibly tripled it. One donor agreed to match the amount made by the fundraiser up to $5,000.00. It has been decided that this amount will be donated to P.O.R.T. and to Child Life Services -- Willem's favorite people at Helen DeVos Children's Hospital. There will also be a sizable sum donated to an HLH research foundation.
I feel it important to inform the reader that, apart from being the parents of Willem, neither I or Erin, were involved in the fundraiser -- we were kept out of the loop and had absolutely zero involvement in its planning or design. Only now am I being brought up to speed. What an amazing feat and what an amazing event.
So, on that note, I am still deliberating on whether it is prudent to divulge the exact numbers when they are given to me.
There will also be a separate post of much needed thank yous.
I will have much more to say on this subject, perhaps, in future writings for much is happening; transformations are taking place; ideologies are changing; "...friends shaking hands..."
It is my understanding that there is much desire to know how much money was raised via the fundraiser, and I completely understand that it is because of the shear magnitude of the event -- I get that, and I would wish to know as well.
Well... The numbers are still being tallied, quite frankly, and the exact amount is not yet known. I can tell you this, however, the number of people (I was told) that showed up was around 800 (600 adults and 200 children) -- it boggles the imagination. It boggles my imagination. I can also tell you this: the goal was to raise $10,000.00 and the fundraiser far exceeded this amount; quite possibly tripled it. One donor agreed to match the amount made by the fundraiser up to $5,000.00. It has been decided that this amount will be donated to P.O.R.T. and to Child Life Services -- Willem's favorite people at Helen DeVos Children's Hospital. There will also be a sizable sum donated to an HLH research foundation.
I feel it important to inform the reader that, apart from being the parents of Willem, neither I or Erin, were involved in the fundraiser -- we were kept out of the loop and had absolutely zero involvement in its planning or design. Only now am I being brought up to speed. What an amazing feat and what an amazing event.
So, on that note, I am still deliberating on whether it is prudent to divulge the exact numbers when they are given to me.
There will also be a separate post of much needed thank yous.
Friday, April 20, 2012
One Month Later
Willem passed away one month ago yesterday -- it still seems like yesterday. I relive the sounds, the smells, and the visions over and over every single day. The events conspire to lie on my chest and hold me horizontal to the bed. I acquiesce.
It had been mentioned to me that I should post my words to the attendees during the ceremony -- for those that could not attend. One month later, I am able to do this. Here is what I said:
God give me strength.
Willem Grey Radosevich is my son.
I have been told that I am a great writer yet I have struggled to find the words to give this celebration all it deserves -- all that Willem deserves. I can only say this thus far:
I was supposed to be Willem's teacher; his guide; his mentor; his spiritual leader, and his hero. I was supposed to be all of these things. Instead, Willem became all of these things to me.
Willem is a warrior and he is my hero.
The Radosevich family has a tradition: My grandfather said it to my father before he went to Vietnam and my father said it to me before I was supposed to go to Afghanistan: We do not say 'goodbye;' we say 'see you later.'
See you later son. Mummy and daddy love you and we'll miss you so terribly much.
These were my words. These words came to me fifteen minutes before the ceremony and my hands trembled and I cried as I wrote them. It was difficult to see the words through my tears.
Willem's ceremony was the most beautiful ceremony I have ever had the privilege to witness. It began with Willem's scout troop conducting a flag ceremony. My brother spoke to the attendees and posited this question, and I am paraphrasing here:
...What can we do for Thomas and Erin?... Here's the answer: They've received an enormous outpouring of support recently and I want to challenge you to bottle your urge to give all of it today; bottle it up, and instead of pouring it out all at once, pour it out over time. Erin and Thomas will need you just as much in the weeks, months, and years ahead...
Syd, "Ba," Willem's grandpa, gave an amazing account of Willem's life and expressed how wonderful Willem was (is): he was inquisitive, intense, intelligent, loved life... Syd did an amazing job of summarizing the love Willem received from family and friends and the quality of life that Willem was able to give all of us during his too too short time on this planet. Willem did more living in his ten years than most are able to do in a lifetime.
It was a beautiful celebration of Willem's life. My favorite parts were the flag ceremony, the monument to Willem that had his Webelos hat and scarf (which made me cry intensely) next to a large photo of my smiling child, and the branch with all of the colored oregami that was made by the students of Meadow Brook Elementary.
I could not possibly capture the splendor of the event in words; one would really have to have been there.
It had been mentioned to me that I should post my words to the attendees during the ceremony -- for those that could not attend. One month later, I am able to do this. Here is what I said:
God give me strength.
Willem Grey Radosevich is my son.
I have been told that I am a great writer yet I have struggled to find the words to give this celebration all it deserves -- all that Willem deserves. I can only say this thus far:
I was supposed to be Willem's teacher; his guide; his mentor; his spiritual leader, and his hero. I was supposed to be all of these things. Instead, Willem became all of these things to me.
Willem is a warrior and he is my hero.
The Radosevich family has a tradition: My grandfather said it to my father before he went to Vietnam and my father said it to me before I was supposed to go to Afghanistan: We do not say 'goodbye;' we say 'see you later.'
See you later son. Mummy and daddy love you and we'll miss you so terribly much.
These were my words. These words came to me fifteen minutes before the ceremony and my hands trembled and I cried as I wrote them. It was difficult to see the words through my tears.
Willem's ceremony was the most beautiful ceremony I have ever had the privilege to witness. It began with Willem's scout troop conducting a flag ceremony. My brother spoke to the attendees and posited this question, and I am paraphrasing here:
...What can we do for Thomas and Erin?... Here's the answer: They've received an enormous outpouring of support recently and I want to challenge you to bottle your urge to give all of it today; bottle it up, and instead of pouring it out all at once, pour it out over time. Erin and Thomas will need you just as much in the weeks, months, and years ahead...
Syd, "Ba," Willem's grandpa, gave an amazing account of Willem's life and expressed how wonderful Willem was (is): he was inquisitive, intense, intelligent, loved life... Syd did an amazing job of summarizing the love Willem received from family and friends and the quality of life that Willem was able to give all of us during his too too short time on this planet. Willem did more living in his ten years than most are able to do in a lifetime.
It was a beautiful celebration of Willem's life. My favorite parts were the flag ceremony, the monument to Willem that had his Webelos hat and scarf (which made me cry intensely) next to a large photo of my smiling child, and the branch with all of the colored oregami that was made by the students of Meadow Brook Elementary.
I could not possibly capture the splendor of the event in words; one would really have to have been there.
Tuesday, April 17, 2012
No, it DOESN'T make any sense
"No... It doesn't make any sense. It will never make any sense. He was loved; he was special; everybody loved him... He was only ten. It doesn't make any sense -- and it never will. Period."
-- Erin Weston. Willem's mother. My wife. My strength.
-- Erin Weston. Willem's mother. My wife. My strength.
Sunday, April 15, 2012
Lament for a Son
"If sympathy for the world's wounds is not enlarged by our anguish, if love for those around us is not expanded, if gratitude for what is good does not flame up, if insight is not deepened, if commitment to what is important is not strengthened, if aching for a new day is not intensified , if hope is weakened and faith diminished, if from the experience of death comes nothing good, then death has won. Then death, be proud."
-- Nicholas Wolterstorff (from Lament for a Son)
-- Nicholas Wolterstorff (from Lament for a Son)
Saturday, April 14, 2012
The pain is settling in
Liliana (Willem's six year old sister) is suffering this evening. Many tears. She was looking at the yearbook that was in her back pack and when she came to Willem's class photo, she began crying. She just now said that she's going to hold on to his blankie until she's very old.
Wyatt wants to visit the hospital. When I asked him why, he said, "I want to see Willem's room." He made himself cry... If you know Wyatt, you would know that this is somewhat of a milestone.
Many tears for all of us today. So hard. So painful.
Wyatt wants to visit the hospital. When I asked him why, he said, "I want to see Willem's room." He made himself cry... If you know Wyatt, you would know that this is somewhat of a milestone.
Many tears for all of us today. So hard. So painful.
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