We were making plans to take Willem up north so that he could be at the "Goo Beach" at Lake Charlevoix one last time before passing on. We were then going to have him spend his last days at the condo in Boyne City over looking Lake Charlevoix. No pediatric hospice is available in Boyne City so it quickly became not an option.
Willem will spend his final days at Em and Ba's house and we thought this a good idea as well because it will be easier for friends and family to come and say goodbye to him. Willem would have wanted to be able to say goodbye to his friends. Erin, the kids, and I will be living there to be with him as well. We will be able to lie next to him and snuggle.
Hospice is coming to the hospital now to talk with us about the logistics.
We are so sad.
We are so Angry.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
Thomas, Words cannot express the heartache that I feel at this moment, I cried today for your son and your family, Iam at a great loss for words... may you find peace in your heart when all is done. Your cuz Tony
ReplyDeleteAbout the time Willem started this horrible battle against HLH, my daughter (who was 8 1/2) lost her battle against HLH. Although she had several "flares" of HLH throughout her lifetime, her last one was a 9 month nightmare that no human being should ever endure and nothing any parent should ever have to helplessly stand by and watch.
ReplyDeleteI had to make the decision to take her off life support. I have worn similar shoes. I know there is nothing anyone can say or do to make this easier or better. I will do the only thing that anyone can do: pray for comfort for Willem and his family.
This has to the saddest news we have heard. We are praying for your family at this time. The Chadehumbes
ReplyDeleteI am Chief Huck's wife, Nichole. I just wanted to let your know that the Huck family is thinking and praying for you and your family. I can't imagine what your going through and i just pray that god watches over you and your family during this very difficult time.
ReplyDeleteNichole Huck
Our sons are in 1st Grade and Kindergarten at Meadow Brook and Colin is in the same pack as your boys for Cub Scouts. Your family is in every single one of our prayers that each and every one of you find peace in this difficult time.
ReplyDeleteThe Oderkirk Family
Tom and Erin, you are all we can think about. Bruce and I lost our first son. We are still sad, angry, and asking why? It is still hard every year when we bring Dylan and Caden to bring flowers to the cemetary for thier big brother. It will get better, I promise. We survive, day by day, knowing that our son is alive, healthy, and safe in heaven, with family and friends. And we will be with him soon. GOD will hold you all strong, belive me.
ReplyDeleteCherie and Bruce Bartz
My God hold you all tightly in his arms, I'm so very sorry you have to be in this situation, hold your family tight & take comfort in each other.
ReplyDelete[God says], do not fear, for I am with you;
do not be dismayed, for I am your God.
I will strengthen you and help you;
I will uphold you with my righteous right hand.
- Isaiah 41:10
I am so sorry for what you all are facing. My the Lord be with you and bring comfort to you in any way possible. Hugs and Prayers
ReplyDeleteMy heart hurts for you and the entire family as well as his friends. May you all find comfort in each other during this time. I am right there with in saddness and in anger.
ReplyDeleteYou don't know me, but I connected to your blog through a friend's facebook posting. I just spent the afternoon reading it from beginning to end. You are brave, wonderful, patient parents. Willem couldn't have better best friends than he does in you. I will be thinking of you...
ReplyDelete