We've been having some sustenance issues of late whereby we have TPN going and we've nixed the formula in favor of regular foods but something is not working out very well. Willem's bloating is in part a result of not enough sustenance going through Willem's GI and part TPN negatively affecting bilirubin levels. Experienced readers will remember bilirubin and how closely we monitored the levels.
In short, and in lieu of alarming the reader, Willem will be re-admitted in to the hospital to get a firm grasp on his nutrition and get all members of his team on board with his nutrition.
We're still in chemo and awaiting word on when he'll be admitted -- 'will keep you posted.
***UPDATE: Admitted. Asked for chocolate chip cookie dough and mint chocolate chip ice cream. He got both.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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