Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
Monday, March 12, 2012
Neurology
Neurologist just said that they will keep him on anti-seizure meds (Keppra) until infection and swelling goes away which will be around four to six weeks "...at the very least." Neurologist stating that the brain wave activitity is indicative of infection and swelling in the areas showing on MRI. Scar tissue around the abscesses indicate that the infection has been going on for weeks. Neurologist surprised that Willem had not displayed any signs of issues, such as vision, over the past few weeks.
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I started following your blog after reading about Willem in a post on the Wood8 TV site. I have followed it since. Please know that Willem and your family are in my thoughts and prayers.
ReplyDeleteI'm so sorry to hear this Thomas, we are praying for Willem. Please keep us posted!
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