Apart from the behind-the-scenes hell, there really isn't anything significant to report; we're in another holding pattern. Still no sign of the tell-tale "gravel" from the lithotripsy and we have appointments on Friday to see how Willem's lung has responded to treatment.
Willem is eating and holding down more foods and we're easing in variety and texture with an adherence to natural foods as much as possible. Juicing (carrots and apple).
The medication Willem is on has bloated his face to such an extreme that it is difficult to... It is difficult to recognize him. I find myself closing my eyes to embrace the sound of his voice.
Every day seems more difficult to deal with than the last.
Wyatt and Liliana are now suffering from some form of a cold: Wyatt seems to have conjunctivitis and a sinus infection and Liliana now has a sore throat. And I continue to theorize that the house we live in is contaminated with an anomalous mold. Sleep deprivation induced paranoia no doubt.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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