Willem's white blood cell count low so holding off on biopsy. Neurologist doing biopsy wanted to wait for other tests to come back as well -- doesn't feel that there's an urgency. Added that Willem's current state of unresponsiveness is due to a combination of meds and the previous seizures.
ID added that it could take two months to rid the brain of the infections.
He was laughing only days ago.
This is pure agony.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
I'm so sorry for you all. I'm thinking of you -- crossing fingers and toes, hoping, hoping that you hear that laughter again soon. XOXO
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