Doctors found that Willem's strictures opened up a little bit -- enough to attempt to put the J-Tube back in and allow him to go back on the formula feeds. The formula feeds are better for the liver and, well, better all around. Erin and I are a little nervous about them putting Willem out for the surgery because the last time they put him out he ended up in ICU.
One of the transplant doctors called to inform Erin that they wanted to get a chest x-ray because the CT scan revealed that there may still be some issue with his lung from when it collapsed after last attempt to put in the J-Tube.
Willem is still working on his food list and has since added a supplemental list for the doctors to have that informs them of foods that he is begging to be able to eat.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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