Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Tuesday, February 28, 2012

To the Floor

Willem finally made it to school today and I went with him in hopes of spending some quality time with him.  When we arrived, it was "specials" time whereby they are either in music, art, gym, etc; his class was in gym.  We attempted gym with his class and his gym teacher gave him an exercise band for us to work with but it was a wee bit stronger than the bands we use at home so we tried exercising with a milk crate that had an orange cone in it... Willem lifted it for maybe three repetitions, ground to chest, and then Willem screamed in agony. His legs gave out as though they disappeared completely, and he collapsed to the floor -- screaming and in more pain than I have ever witnessed him in.  I knew the answer but asked him what was hurting anyway:  Willem said that it was his back, which meant to me that it was his kidney stone and that it probably had moved again.

Luckily Syd was still there and was exiting the building as I carried Willem to the office.  I asked the gym teacher to run and get Syd.

As Willem lay in pain in the office, Syd sat by Willem's side and comforted him while I called the kidney doctor's office. I spoke with a nurse and she suggested that we immerse him in a warm bath -- I told her to pull up his medical file and added, with as much patience I could muster, that Willem has a bunch of tubes sticking out of his body and cannot be immersed in water.  She looked at his file then promised to inform the doctor then recommended that we apply heat and give Tylenol and suggested to bring him to the ER only if the pain does not go away and he becomes nauseous.

Willem is now resting comfortably on the sofa; heating pad on the back and wrapped in a warm blanket.  My precious little man.

He desperately wants to be in school and it's just not working out for him.

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THANK YOUs
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Thank you again Theresa for the juicer.  Your donation to the cause is curing insides. Thank you.

Thank you Zuke family for your generous donation.  Thank you.

Thank you teachers -- you know who you are -- for continuously making diners for our family.  Erin came into the kitchen yesterday and said, "Ugh... I'm getting fat from all this good food."  Thank you.


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