Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Monday, July 30, 2012

Convergence

One year ago today Willem began feeling ill.  He went to bed complaining of muscle aches and we shrugged it off -- reasoning that it was a result of the running around he did during the family day at my unit.  But alas; it was not... It was the beginning of our family's hell.

As I have mentioned, I am committing myself (as much as I can, and, at least for the now) to continuing this blog.  I also mentioned that I was going to attempt to begin a new story; a story of Willem's life and what it was that made him so special to us all.  I cannot now promise that I will ultimately achieve this goal yet I can promise you this: you will come to know Willem if you so choose.

To begin my movement toward this goal, I have decided that the best time to tell the story of Willem's beginning is this very day: at the one year anniversary of the very moment I feel his health began to decline and ultimately take his precious life.

I feel it necessary to throw in a disclaimer here:  From this moment forward this is now my journal and my thoughts and feelings, however inappropriate they may be perceived, will pour out.  Uncensored.

Saturday, July 28, 2012

Touching and So Very Sad


Liliana wanted to know what was was in the box that looks like a book.  We told her that the box contains Willem's ashes.  Not long after, and the house very quiet, I encountered this touching and very sad moment.  Through trembling hands and blinding tears, I endeavored to capture this image.

This is my attempt to continue the blog but speak less of our pain and daily unbearable suffering and more of Willem's good days and what it was that made him so special to us all.

I have been told, by those who love and know me, to keep writing.  I will try.