And the Good Beat Goes On

Let's start with Weds 9/21:

Four (4) laps around floor 9. Normal gait (heal to toe)  -  Good stuff

Docs continue to be pleased with his progress. It is a process for sure!

The docs did the procedure to take out Broviac and put in the port(as described on 9/20)  All went well and when he woke up in the procedure room, before going back to his room, he opened his eyes and with me staring right at him he said, "Grilled Cheese Sandwich". Because of the procedure he could not eat after midnight and before he went down he had requested a grilled cheese with tomato soup.  Upon return, about 40 minutes after waking up, he ate an entire sandwich and I fed him most of the soup. He ate slowly and it stayed down.He then  put a Bionical thing together, order spaghetti and meatballs for dinner and  fell asleep.

Thursday 9/22-today

Sat in chair, out of bed, for 2.5 hours (new record!)

Went to PT therapy gym and rode a bike.  Played in the play room for awhile as well

Ate  lunch too quickly and  maybe too much and threw it up. He is hungry and just starts grabbing and stuffing his mouth.  Lesson learned hopefully  him and definitely for us. This is really a good sign as he is hungry, is eating, and is getting stronger. His request at 4:30 was for a "cheese burger
 in paradise"- a Jimmy Buffet song the nurses and I were singing to him when we delivered his cheesburger with mustard, ketchup, and American cheese
  (we had fun doing it even if he did not fully appreciate it). He was eating this as I left for Wyatt's soccer practice.

 Willem is slowly being returned to us as his real personality (not drug induced) begins to re emerge. He is now back to being the very polite boy he is, smiling more everyday, and daily more alert and  with it.

Hospital school starts for him next Tuesday- He is ready for sure. He wants to see his friends at school, Cub Scouts, and soccer.  This is all good.

I want all to know Erin is the glue holding the family together and the glue is very strong. It is a daily challenge. but she is up to the task.Some days are better than others of course, but for now we are all doing our thing and watching the miracle of recovery.  We are buoyed by this miracle and what a joy it is to behold!

We still have a long way to go so please keep Willem in your thoughts and most importantly your prayers-Thank and Take Care   Go HUG YOUR CHILD!.