Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Wednesday, September 7, 2011

Chewing

We managed to get some semblance of a smile when we walked in the room this morning but when I took off my hat Willem furrowed his brow and frowned.  I'm guessing he didn't like my shaved head.

Willem informed us that his throat hurts more today than it did yesterday.  He's back to not wanting to swallow as much and reluctant to speak so I'm assuming his throat might be a little infected again.  Willem had a little apple sauce and actually chewed on an Oreo cookie.  It was quite exciting to see him chewing again -- something he has not done in over a month.  I was later able to brush his teeth which is something else we haven't been able to do in a very long time.

The speech pathologist wanted to do a swallow study today which involves drinking a barium shake and watching where the fluid goes via x-ray.  They wish to make sure that he is swallowing okay and that none of what he swallows is getting into his lungs.  Erin and I feel that they're moving a little too quickly... If he didn't swallow an Oreo cookie -- something he likes -- what makes them think he's going to swallow yummy barium?

Offered to read to Willem but he just wanted to sleep.  Cannot blame him really.

Ahhh... PT.  No rest for the weary.

Can't stay as long today... Too much to do before...  Well, just too much to do.

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Thank you Michael.  Again.  Thank you for the amazingly generous donation to Willem's recovery. And FYI: Wyatt told me that I needed to video call you and tell you to come back.  How's that for a complement.

Thank you Uncle Skip, Aunt Sharon, Dan, Susie, Trevor, Jonah, Eli, & Ty -- we saw your note when we arrived and I'm guessing that the books and Legos are from you.  The book I was trying to read to Willem was one of the books you left.  Thank you for stopping by -- I was hoping to be here when aunt Sharon stopped by so you could talk shop with me.

Thank you Jody for the hug.  I needed that.

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