What A Difference a Day Makes

For Tuesday 9/28 and Weds 9/29

Night and day difference in appearance, attitude, and general well being on Tuesday and this morning as well.

Tuesday- He had PT in the morning, was putting together a Bionical on his own while sitting in the chair when I walked in, then he read for awhile and took a little rest. Susan Meltzer from Meadowbrook Elem. came and met Sarah the hospital teacher. They are working closely together. She then spent about an hour with Willem. All is well on the education front.

Willem's appetite has returned pretty much full on. The problem is keeping it down. Feeding is supposed to be done very slowly and controlled. Some how he keeps finding ways to get more food more quickly than he can handle and up it comes as well as just keeping it down when he does eat slowly  Last night about 8:30 the gastro doc. was in and felt his stomach, intestines, liver, and kidneys and said they were soft which is a good thing. . There is definitely a problem here that the doctors are watching.  Tomorrow, Thursday, he is going to have a Motility test. He will eating some radioactive pellets,  then have pictures taken as they work their way through his digestive system. They will take pictures every 15 minutes for 90 minutes.
Hopefully this will show them what is happening where.  I will report the findings tomorrow.

Today, Weds., was another good attitude day and he read, did some Bionical work, and we talked. He is such a polite little boy and the staff love him because he is so sweet. He is getting the best care possible for sure.  These are some dedicated people for sure. Thank you all! We can not say that enough. We are daily grateful. See you all tomorrow!