Nothing really significant to report today -- Willem is doing okay and had some good numbers. Still on the mend slowly but surely.
Spoke with today's nurse about the nose plugging incident that happened last night and she agreed that that was a bad method to use to get Willem to swallow. So that will not happen again and, if it does, I'm allowed to throw whomever is doing it through the wall. Well... She didn't actually say that I could but...
I entered Willem's room today to find him and Erin putting a jigsaw puzzle together. I love Erin. Erin informed me that Willem got up, with assistance, to use the bathroom. Twice. He also did some walking without the aid of a walker. These are improvements.
Erin and I took Willem for another walk around the 9th floor again before we left. I held him by his elbow the whole way but he was pretty stable. Doing well.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
Hi, this is the Schneiders. We are all praying for Willem and want let you know we are happy to help in any way needed. We know your family from Boyscouts and Meadow Brook. Wow! We had no idea you were going through all this! The school sent a letter home with the 4th graders. Willem and Anthony are both in 4th grade at MB and Lilly was in Mrs Klotz room with our Annamaria last year. We would love to have Lilly for play dates after school or on weekends. Thought we could round up the boyscouts to help as well. What a great opportunity for them to help someone they know! They could do yard work with their dad's (we can never find time to mow the lawn) or any house chores even laundry or dishes, deliver meals the mom's make, get the mail and paper, whatever you need! We'd like to help if we can. Just let us know what your needs might be. You can Call me, Kathy, or Curtis my husband at 940-4638. Hang in there. Hopefully you've seen the worst. You are in our prayers each night! We will keep checking your blog as well.
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