We lay awake in our beds and we dream of infinite possibilities; we fantasize and we wish for things. Willem's overriding wish these two days past has only been for a taste of something with flavor. Anything. He begged and he pleaded. It was a day and a half struggle but we finally got approval for a spoonful or two of A1 sauce; Willem's favorite and the closest he will get to a steak for a long time. Pray that it is only a long time and not forever. I fear terribly for my boy but hope is not lost.
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Thank Yous
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Thank you Scott Barcheski for the unexpected and delightful visit yesterday.
Thank you Pam and mom Weston
Thank Bill Vreeke for the awesome party last night -- a necessary diversion.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
A1 Sauce! Way to go Willem! If anything has flavor...that's full of it!!!
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