Willem was smiley, extremely talkative, and, when he didn't think we were listening, he was singing. When asked if he was excited about today's surgery he smiled and simply said, "yes." Willem could be seen skipping to the surgery prep room after being weighed. The boy is anxious to eat real food again and anxious to get rid of some more tubes. We are anxiously awaiting the same.
The news came to us yesterday that his third of six genetic tests came back negative for Familial HLH. We were also informed that Willem's six year old sister will definitely be Willem's bone marrow donor.
Thank you uncle Greg for driving up here from Chicago to be with us. We love you!
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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