The morning routine seems to be x-rays now because Willem's stomach fluids are not emptying into his intestines -- which was the whole point of the surgery. It's perplexing because we watched the stomach fill up with barium the other day and then proceed as planned through the bypass. Success. We cannot figure out why the stomach fluids are not going through the process as well. We will occasionally clamp the drainage tube in hopes of having the process work only to find that Willem will develop a fever and then, as did happen last night, vomit the stomach contents.
Very discouraged.
At the risk of oversimplifying things, or demonstrating my ignorance, I've been wondering if maybe the stomach doesn't really feel like passing anything through because it isn't substantial. They put barium in his stomach and it went through the system... Why not have him drink or eat something and see what happens? Heck, why not put formula directly into his stomach - like they did the barium - and see what happens. After all, he's not had any nutrition in days.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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