Resting. Occasional moans with no apparent correlation with changes in vitals. Probably in a little pain. Now adding potassium as he is a little dehydrated. Respiratory will be coming in to do cough assist and deep breathing to get his lungs to open up more. In looking at him, I see a boy that's having a difficult time breathing. It pains me.
Willem was supposed to have a friend from school visit him around five today but we had to call and cancel given the circumstances. We hadn't the opportunity to tell Willem yet and while he was being wheeled up to PICU he wanted us to make sure to tell his friend that he was going to be in a different room. He was crushed to learn that he would not be able to see his friend. At this time I wish to thank Willem's friends who come to visit and play with him -- it means so much to him and to us as well. Thank you for helping Willem be the boy that he is and for being a crucial part of his recovery.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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