MRI revealed that there are compression fractures on Willem's spine. Nurse stated that when one is on steroids, for as long as Willem has been, it weakens the bones. The full body CT scan revealed more "nodules;" now they're in the kidneys. Still awaiting biopsy results from the skin lesions.
I have been unable to find any "acceptance" of late and, apart from brief moments of delusion, feel only despare. I just can't believe this is happening.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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