Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Wednesday, March 14, 2012

Skin Lesion

It was later noticed that there was a skin lesion on Willem's arm.  It was a grayish-white pustule that rather reminded me of the pustule that formed on my fellow soldiers' arms in Mississippi after being vaccinated for small pox. Very similar.

Not much change from yesterday -- still all a mystery.  Rounds revealed results from yesterday's tests -- which were negative for this-and-that -- and added more tests: Full body CT scan and biopsies of the newly found nodules on Willem's body.  It was mentioned more than once that Willem is an anomaly on so many levels.

Today was the full body CT scan to look for other possible pockets of infection; spinal MRI; and nodule biopsy.  Tomorrow will be brain MRI.  Friday will be the brain biopsy if all other tests fail to reveal the information needed.

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