As the title suggests Willem will be starting chemo (Etoposide) at noon. Anxious would be what I am feeling right now; hopeful for a quick change for the better and worried about... Well, just plain worried.
The plan is that Willem get chemo twice a week - Friday and Tuesday - for two weeks, then once a week then etc. Hopefully there is a quick turn around after the chemo begins and then he will be moved to the Hematology Oncology (just found out it's not Hemog but Hemoc [or something like that])floor, floor nine, for his chemo treatment. The rest will be outpatient treatment when that point comes and we're looking at 6 months of this.
Willem will stay on the ventilator today.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
We refer to hematology/oncology as HemeOnc. We just lump it all together <3 I am a pediatric chemo nurse and the start of chemo is always such an anxious time. However, as soon as you bring the first dose and give it. Parents always say "that's it?". It really is just like all the other meds he is getting. It's just treated a bit more special :) Deep breath, baby steps....
ReplyDeleteThanks for the updates!! Still holding you all close to my heart.
Thank you Carie. I Read your comment to Kristi, Willem's PICU nurse, and she said, "yep" and other words that I can't remember because I got interrupted while I was writing this and my memory has gotten worse since this whole thing started. All good stuff to be sure.
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