12:30pm
Arrived to find Willem with his eyes open again but watching A Land Before Time this time around. Got a big smile out of him eventually (he seemed more interested in the movie -- I don't know why, we have it at home).
No more talk of V.O.D., which is great, but bilirubin is up to 10 today so still issues with the liver. Confidence is still high though.
Nurse stated that, during rounds today, there was talk of extubating tomorrow. Willem will have to demonstrate that he can breath on his own, which he appears to be doing quite well, and do so while they continue to turn down the Breaths Per Minute (BPM) on the ventilator. I mentioned to Willem that he has to show us that he can breath on his own and I saw three yellow lines on the ventilator monitor (which represent his own, unassisted, breaths) increase in height and rate. Gave me a smile.
So, hopefully, off the ventilator and sedation tomorrow.
Willem is off another med, the insulin, now that his body is auto regulating. Auto regulating is a good thing.
Getting more and more of our Willem back each day.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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