Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Sunday, August 14, 2011

Willem's Status as of 08/14 900am

******HAPPY BIRTHDAY WILLEM******

Willem was put on a ventalator this morning after finding that he was having a very difficult time breathing.  Doctors have also put a drain in his abdomen to drain excess fluids - to relieve pressure - and may have to do the same to his chest.  They've drained a half of a litre out of him thus far but are leary of draining more. 

Willem is currently having a colonoscopy done so they can do a biopsy.  A lot of hope is being placed in being able to study that tissue sample.

Willem's vitals are fine and he is still very strong.  They've given him morphine for pain.

He is anxious to have cake and open presents.

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