Willem pulled out his naso tubes at some point in the morning. Nobody could say when, however. Which bothers me quite a bit.
Arrived to find OT and PT placing Willem in a wheelchair. They said that he stood up on his own.
Probably moving out of ICU at some point today. Chest and Abdominal drainage tubes coming out tomorrow.
Because Willem still refuses to swallow, the the throat doctor wants to do a scope to see if there's an obstruction or if something else is the issue. Scope will be tomorrow.
Willem seems to stare right through me; heart-wrenching. He was, however, able to point out Darth Vader and Chewbacca in a Lego Star Wars book. He is making progress.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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