Willem will be moved out of the PICU in a matter of minutes and relocated to the Hematology/Oncology floor for the remainder of his recovery.
His NJ tube (feeding tube) was reinserted and the second he regained consciousness he went right for it and tried to pull it out. He is now wearing arm braces that prevent him from bending at the elbows. I took them off once but he went right for the tube again. And I'm pretty sure his brain is okay because he's finding ways to use the environment around him to get a good tug at the feeding tube. Stinker.
It has been 24 hours since his throat scope and biopsy were done so we're hoping for some idea as to what is going on in his throat but the general consensus is that he'll be just fine.
Thank you Dean, you big lug, I thank you, and my family thanks you.
Thank you Jackie and Christian for watching our babes today. Thank you for having a Nerf war with them, and playing Lego Star Wars with them, and sword fighting, and... Thank you.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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