Spent the night at the hospital because Willem didn't want me to leave. We watched a few Harry Potter movies until the power went out (routine test) and we both went to sleep. Neither of us slept well: Him for obvious reasons and me because it's an ICU... Who sleeps well in an ICU?
Awoke to find Willem blanket less and curled into a ball. Someone had taken off the warm blanket and put it in a chair and the other one was at the foot of his bed. 'Guessing that he had been changed and cleaned early this morning and they decided to just leave the blankets off. I had a chat so-to-speak with the nurse.
Nurse and I spoke of some goals for Willem for today: Washing hair and getting out of bed. Much better than last week's goals of... Well... Let's not bother with that -- if you've been following, you get the idea.
More talk of removing drainage tubes today and not sure yet when, or if, that will happen.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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