I will spare you all the ites, odes, and ydes and just tell you that all of the HLH indicators that the doctor's look at are down; i.e. at this juncture, Willem is winning his HLH battle.
Another ultrasound was performed on his liver to double check for the V.O.D. I spoke of yesterday and it was found that the blood in his liver was flowing properly today. This is good news but I was informed that another -ologist was looking at the ultrasound and had other concerns. So... Maybe no V.O.D. but other concerns. Not going to worry about it now and I don't want you to either.
Willem is watching Harry Potter at the moment but is very drugged. He did try to talk a few times. Nurse Jason mentioned to us that he's going to see if a dry-erase board will be allowed since Willem is trying to communicate and maybe some dexterity toys of some sort.
Still fighting. Still stable.
Thank you Peri for watching Wyatt and Liliana today.
Thank you in advance, Brett, for lunch. Way cool of you. Can't wait to see you.
Child life just brought in a Nerf basket ball and hoop.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
Your little boy and your family are in my thoughts and prayers. He sounds like quite a fighter. Xo Michelle McGregor, FHN '86
ReplyDeleteThank you Michelle. Rest assured that your thoughts and prayers are very welcome and equally helpful. Thank you.
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