Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Monday, January 30, 2012

PICU: 31 Jan 2012 02:15AM

Respiratory nurse woke Willem up to give him a back massage with a pneumatic vibrating massager.  Willem hated it; said it caused him great pain but he powered through it nonetheless. Like a champ.  Very tired boy -- hates this floor of the hospital the most and everyone on it as well. But... His breathing is a little better but still working for it.

I fear a possible intubation yet try to acknowledge the fear and then ignore it and enjoy the present.  I think that is what all this acceptance hubbub is all about: touch him; love him; comfort him; accept and enjoy that I have him.

BPM: 101
Ox: 98
RR: 45
BP: 104/62

Forgot to mention that he was given morphine a while before the respiratory therapy.  Or did I mention that?  Daddy getting sleepy...

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