Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Tuesday, January 17, 2012

Surgery Day: Waiting for His Surgery Prep Room at Helen DeVos Children's Hospital

Not a care in the world and very anxious for the surgery.  He is so excited at the prospect of being able to eat solid foods again and to be rid of the bag and tube pictured in the photo.  We cannot go anywhere without the bag and tube.  Not shown here is the backpack that holds the formula and feeding tube that also has to go with him everywhere. 

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