Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Thursday, February 2, 2012

Out of PICU

Willem was moved back to his old room on the Hem/Onc floor last night.  he is doing and looking 100% better.

Still waiting for genetic tests results from Cincinnati and still in the appeals process (appeal 1) with TRICARE insurance regarding payment of Willem's pending BMT.

For those of you who have been asking what you can do to help:  If TRICARE denies the appeal, we may need your assistance in lobbying our insurance company -- or whatever else it takes. Become ready with ideas and await the battle cry.

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