Tested positive for HLH / MAS.
Treating with anakinra and now adding steroids and insulin. So add steroids and insulin to the list on the last post.
I like how Terri said it: Everything that they treat has a side-effect that then has to be treated. And this is happening now. A biological bureaucracy.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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