Rough night for Willem: temp was up to 104+ and doctor decided to increase the amount of kineret and temp is down to 100.5 at the moment so this is good. Increased the steroids. Not on insulin yet. Still on ventilator.
In order for this treatment to be successful or to have the best outcome, Willem's kidneys need to stay strong and Willem's kidneys are very strong. Heart good. Liver good. Lungs still lagging behind a little.
Doctors are aggressively treating for HLH.
We are in wait status now and, hopefully, we see some form of success in two or three days. Willem's recovery will, however, still be in terms of weeks and months.
Discovered that Typhoidal Tularemia not spreadable via human to human contact so we don't have to wear the gowns, gloves, and masks anymore.
Thank you SSG Thomas for stopping in to say hello. Much appreciated.
Willem opened his eyes for a second so I got in a "hi buddy" and then he was out.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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