Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Thursday, August 18, 2011

8/18 915am

Doctor called:  Putting Willem back on the ventilator because he remained highly agitated throughout the night and morning and his respiratory rate remained high.  They will also be doing an MRI on his brain as there is some concern that the HLH has

Paraphrasing here but in the words of our dear friends Greg Gildner and Michael Birdman:

Willem had his ups and downs as his condition got worse, so Willem will have up and downs as his condition gets better.

Anxiously awaiting the MRI results now.

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