Not out of the woods yet but I have some pretty decent news:
The opposite of INtubate is EXtubate and guess what? The hospital is going to give breathing control back to Willem by extubating and taking him off the ventilator. If anyone is wondering... This is a good thing.
The hemotologist in charge of treating Willem for HLH is amazed that he is doing well enough to be off the ventilator already. She, the hemotologist, is careful to say that Willem is not out of the woods yet but is very optimistic about his recovery.
They will be changing his steroids to something that is a longer acting steroid that also happens to be in very short supply but he will get. He will also be put on a blood thinner because a clot was found in his liver. I have been assured that we do not have to worry about clots traveling and damaging anything else.
Again, not out of the woods but I have more good news than bad so I'm just giving out the good stuff.
For those of you that pray... I guess keep praying.
Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.
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