Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Tuesday, August 23, 2011

Pretty Much A Good Day

PM
Arrived to find Willem with his eyes open and able to nod or shake his head in response to questions.  He pointed to the television so I turned it on and he elected to watch Sponge Bob Square Pants -- one of his favorites.  I asked Willem if he could squeeze my fingers and he could -- he squeezed them pretty hard considering.

Willem does have jaundice so he's looking a wee yellow and the doctor added that he may even turn a little orange before this is through.  But, apart from the jaundice, Willem is looking pretty good.

There has been some talk of extubating in a few days; docs are a little leery of moving too quickly but are weighing the advantages and disadvantages.  It had been previously mentioned that there is an advantage, to the liver, of having some sustenance move through his mouth and GI as opposed to through the PICC.

So... It would be nice to see Willem respond positively to the extubation, take in nutrients through the mouth and, consequently (and hopefully), see a reduction in the bilirubin numbers; i.e. healthier liver.

Still too soon to tell what the GI is doing (refer to the posts about his colon being necrotic) but the numbers are supporting the idea that things are healing in there.  The blood in the stool I reported on earlier might even be one of those indicators.

Paws with a cause stopped by the outside of Willem's room and he smiled big.  Thanks PAWS.

Thank you to my dear friend Tina, City Beautiful Design, for creating that "Donate" button for Willem -- you saved me hours of trying to figure that out. Oh, and thank you for making sure it worked ;-)
Thank you Jane for the chicken bake.  That was really AWESOME!!!

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