Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Thursday, August 18, 2011

8/18 324pm

Movies, thus far, have not proven to be an adequate escape for me.  Today, for example, Michael and I went to see The Rise of the Planet of the Apes (awesome movie by the way. Well done.) and there was mention, albeit brief mention, of viral infection and the immune system and this tends to put me into a, for lack of better terminology, state.

MRI came back negative for any brain issues; he's still Willem up there.  They will be performing a lumbar puncture shortly.

Doctors have decided to get a jump ahead of the HLH and go strait to the chemo.  Willem will now be getting chemo therapy.  Will be using Etoposide.

Positives:
MRI good.
Ultrasound of organs look great
Nervous system looks good
When he was lucid he was making sense; i.e. forming complete sentences
Labs are getting better
Hematology and Rheumatoid group is awesome, "top notch," and are pleased with the labs.

Erin is beautiful and stoic.




1 comment:

  1. I'm glad to hear they started the Etoposide. You are exactly where you need to be.

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