Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Sunday, September 11, 2011

And... Take A Step Back

Yet another setback to echo our major achievements of the week; and involving blood: bloody emesis and bloody stool.  In talking to the doctor, I've decided to take Erin's approach to the problem which is that it's one setback of many occurring during an upward trend; i.e., Willem's still getting better. Willem's numbers doing well enough to continue suggesting that Willem is on the mend and that this current issue is probably just another viral or bacterial infection occurring as a result of having a suppressed immune system.

Another scope was done because of the bleeding.  Willem's throat looking good (healing) and nothing to suggest that he should have trouble talking or swallowing.  Scope found that his esophagus healing; stomach good; bleeding in intestines.  Biopsy done -- waiting for results. Lumbar puncture came back negative for anything to suggest brain damage.  Trending upward.

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Thank you aunt Peri, agian, for taking Wyatt and Liliana -- that helps us out so much.  And thank you for the food and other stuff as well.  You are awesome!
Thank you Jane for the milk, chili, dip, and chips.  Thank you for the laughs as well.  Needed.

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