Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Monday, September 19, 2011

Willem is improving!

First of all I want to apologize to all for the lapse in my blogging. We are up to speed and ready to go.

I want to congratulate Thomas on the excellent, heartfelt, and loving blogs that only Daddy could write. Great job Tom, you are in our daily prayers as well as Willem. To all of our friends who have been following the blog, Thank You. You truly have made a difference.

I just left the hospital and had a nice conversation with Dr.Cornelius. What a gentle kind man he is, and his level of caring for Willem is deep.

He is very pleased with the direction of recovery. See below for a few specifics.  Willem just needs to be eating more on a daily basis, get a little stronger, etc.

I want to thank Susan Meltzer third grade teacher from Meadowbrook Elem. who is going to voluntarily come to Willem's room twice a week and at least keep him somewhat up to speed.  I will fill in a little as well. Thank you Susan you are a saint.  


Today Willem:

Ate Doritos and drank pop. Evidently he did so a bit too quickly and up it came.

Ordered from "M" a Subway  ham, American cheese,  regular mustard sandwich on cheese bread. When the delivery guy arrived, Willem was overjoyed -- reaching out and saying, "Subway! Subway!" I cut about a quarter if it out of the middle and he ate it slowly and drank slowly and it all stayed down with little consequence. This is Huge!

As of 4:00 pm he had already walked 3 times, eaten food, been talking, and for the most part feeling good. Wow!

He looks great with normal color which is an improvement over yellow/orange for sure.

His "numbers" have improved and continue to do so daily. Liver is almost back to 100%, kidneys are fine, blood counts where they need to be. All in all he is tracking the recovery highway with good direction. There have been a couple of episodes and there very well could be more as we move forward. We will deal with them as they arise and move forward. The key word here is forward.

As grandparents Mary and I feel blessed to have the opportunity to be involved in all three kids lives- Thank you Erin and Tom. We feel honored and are more than up to being more involved for the next year as well. Together WE can do this. This means all of you as well. Your generosity and kindness has been felt and is appreciated far more than you can comprehend. Thank You All.

1 comment:

  1. Well done Syd. Thank you! It is so much easier to do my job down here when I hear such good news. Thank you!

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