Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Thursday, September 1, 2011

Biopsy revealed that Willem has a serious yeast infection in his esophagus; probably caused by the chemo, steroids, and HLH.

Willem was put on Ambisome for the infection and will be on it until the infection clears.  This drug is hard on kidneys so they'll be watching his kidneys closely.

Willem's white blood cell count was at zero because of chemo and HLH so they will be holding off on the VP16 / Etopocide / chemo until after his bone marrow test which is tomorrow at 11:30am.  His NJ feeding tube will go back in at that time as well.  He will also be started on Neupogen to bring his white blood cell counts back up.

Decreasing his steroids to half (2.5mg) two times per day which should bring him out of his funk a little more.

All in all the doc said that there is a lot that looks good.  Will know more after the bone marrow test comes back.

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Thank you grandma and grandpa Weston for the visit.  Hopefully by the time Willem gets out of the hospital you two can figure out the parking situation.

Thank you Suzy.  Wow.  Thank you so much.  You are a super soldier and a super person.  Thank you.

Thank you Betsy for the all the food!  The cookies are for mommy and daddy only, right?


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