Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Thursday, September 1, 2011

Preventive Medicine

Add restraints to the list of medicines.  Around 5am Willem tried pulling out his main line.  Now he gets restraints.  This sucks.

Some poor kid is screaming in the room next door.  That sucks too.

Couldn't get Willem to swallow any water this morning but he sure does like having it in his mouth.  Makes him smile -- which doesn't suck.

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