Snuggle Time

Willem is getting tested for Adenovirus because of the bloody stool and bloody urine that he had a few days ago and doesn't have any more.  HemOnc doctors are all back from holiday and must have missed ordering lab work while they were away.  Sorry, that's me trying to be funny. So we're all back to wearing gowns and gloves again.

Willem is talking again and actually did some swallowing: swallowed some sprite and water then asked for pizza.  In fact, he saw some pizza on TV and started asking for pizza again.  Informed us that we can get some pizza down stairs.

HemOnc team is gong to put in a broviac catheter, which is a more permanent line, tomorrow at 2pm.  They will also do another lumbar puncture to look for, or rule out. any ensephalopathy.

Willem spent a lot of time snuggling with me in the reclining chair and it was wonderful and warm. He has regained more control with his hands as evidenced by the putty sculptures he was making with with a clay-like substance called "therapeutic putty" he got from OT.

HemOnc requested blood samples from Erin, Wyatt, Lili, and myself in the very unlikely event that Willem will need a bone marrow transplant.  The doctor stressed that a transplant would be very unlikely but likes to be prepared.

Found out today that the doctors here at HDCH have been in continual contact with two HLH experts: Dr. Filipovich of Cincinnati Children's Hospital, and Dr. McClain of Texas Children's Hospital.

All in all, Willem is making progress.  Good day today.