Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Tuesday, September 6, 2011

Holding Pattern

We're just kind of hanging out around Willem's bed watching everything that he does - because he's doing a lot more - and looking for every tiny positive sign of progress; whether it be physical or mental.  Em was reading There's A Boy in the Girls Bathroom to Willem and he seemed cool with it for a while.

Someone came by from Mary Free Bed to deliver Willem's boots that are used to stretch out his achilles tendons.  They look a lot like the early snowboard securing method before the boot/binding combo they have  now.

Willem is saying some weird stuff from time to time like, "I need to get the blood out of my eyes" or "I want apple juice; it's in the pink bucket" but I'm not sure what to make of that.  I have ideas about it but I don't go there.  No point really.

Doctor just came in... I have only good news so no real point in giving all the numbers unless you want them.  The most important number we needed -- the Absolute Neutrophil Count (ANC)-- we finally got today after having all zeros for over a week.  When the ANC goes up that means his insides will start healing.

No more blood in urine or stool.

Willem is going to go walk a lap now.  Cross your fingers.

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