Willem -- only days before he was stricken with HLH -- leisurely walking, straw in mouth, not a care in the world. A healthy 9 year old boy.

Friday, September 2, 2011

One of Those Days

Willem's restraints were replaced by big white boxing glove-like mitts that doubled as a pillow for him at times which was kind of cute actually.  Eventually the mitts went away too as one of the nurses had fashioned a, for lack of a better word, halter-top-like-shirt-thingy that covered the central line.  Willem no longer seems interested in tugging at the line.

For me it was a long and sleepless night followed by a long and sleepless day.  Lack of sleep does wonders to play tricks on one's psyche and never for the good.  Found today to be particular stressful but, in looking back on it, not sure why.  Today was no worse than others; clearly the lack of sleep.

Willem gave Wyatt and Liliana a hug.  Heart wrenching.

Erin broke down and cried a few times while we were at our childrens' school open house when the teachers and parents came up to us to give their support.  Erin said that she usually just cries in the shower so the children don't see.  I did not know this. The stress is taking its toll to be sure.  We are, however, finding our footing and pressing on.

We are truly blessed by the outpouring of support we've received.

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Thank you Trevor for your Paypal donation.  Thank you so much and I truly hope to meet you soon.
Thank you Greg for your Paypal donation.  I miss seeing you and having our laughs.  'Could use some laughs.

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